Wanted to get an update up Monday after arriving home, but just didn't find the time. Here's where things are with our 14 year old son. Check out previous posts for a full day-by-day: First post, Saturday update, and Sunday update.
Getting Home - We got home midday Monday and immediately discovered we were driving on an almost completely flat tire. A large screw was in our rear left tire and I had to head right back out and add air then make an appointment to fix the tire while Molly napped yesterday. A flat tire after a long drive leads to scary what-could-have-happened thoughts! God in His mercy brought us home safely. And the trip went very quickly, probably 75 minutes. When Danny and I came home on Thursday night to resupply, it took four hours after never going faster than 35mph in blizzard-like conditions.
Diagnosis - There is still no official diagnosis other than fluid in his hip. The new MRI's didn't reveal anything new that would help a diagnosis. Nothing in the bone or tissue that tell a story. And nothing in the final analysis of the culture from his hip fluid. The growth in his hip fluid culture ended up being described as a contamination, as I explained Sunday.
What's Next - We take E back to Shriner's on Thursday (yes, in two days) to see his pediatrician there. We return again next Tuesday to see a rheumatologist. He hasn't seen a rheumatologist yet, but without a clear diagnosis they need to keep trying to figure this out.
Elijah is using a walker and will hopefully return to school on Wednesday. He can get around without the walker, very slowly, but the walker gives him comfort because he's nervous about tweaking it as it's still a sharp pain. He also likes the walker because it will help kids at school give him space so they don't bump him in the hallway.
Thanks - Thanks again for all your thoughts, prayers, food, and everything else that has been done to help. We are so blessed.